Skylar never ceases to amaze me. We went to the doctor this morning to get a new script for physical therapy and headed down south to see the neuro about his seizures he had last week. We spoke for a very long time, he answered all of my questions. There was only one other patient there so it was really nice to have some one on one time with a specialist, because he has 4 offices and so many patients to work with. He told me from what I described Skylar had complex partial seizures. Skylar did wonderful during the hook up of the EEG and only complained a few times during the entire recording. The tech was such a lovely woman, and was so helpful. All in all Skylar was awesome because he doesn’t even like me brushing his hair. During the 40 minutes he was hooked up there was a lot of seizure activity going on in the left part of his brain, he almost had 8 seizures the entire time but there was no trace of hypsarrhythmia. And no more infantile spasms! We are uping his dose of his medication, getting some blood work done later this week to check his levels. After he was all done, the tech gave him his first lollipop ever, and now he’s obsessed. We got him a giant bag on the way back. Crossing my fingers and praying we get them back under control.
Also, Skylar is exactly three feet tall now, he’s more than half my height and almost 3. You are so awesome my little giant, I love you so much.