Freaking out over here. I thought I was the only mom on Tumblr with a child that has schizencephaly, I’m in awe. I am so glad you found me. There is a support group on fb with all moms, dads, and even adults with Schizencephaly, I absolutely need to add you.
Again, so glad you found me. My shitty day just got so much better. Let me know and I’ll invite you xoxo