3 years ago my precious little boy was diagnosed with Schiznecephaly, to my horror he was missing nearly half of his right side of his brain. To add insult to injury, he started having seizures shortly after and was also diagnosed with a rare form of epilepsy, infantile spasms. These seizures caused him to basically have a stroke. He lost all motor function, all progress in his development, his entire left side of his body was paralyzed. He did nothing. He did not try to sit up anymore, did not use his left hand or leg, he was not smiling, laughing- he was like an empty shell. After we finally got the seizures under control, we had to start from square one. He had to learn everything all over again, and this time with limited use of his body. Everything was falling apart right in front of me and I felt like I could do nothing.
One of the most significant things being a special needs mother has taught me, is that there is nothing I can do to change what I have been given; only how I live with it. Through more than two years of tears, screams, hits during daily therapies, we finally got here. Something I’ve prayed, begged and cried out for so many countless times. We have your first steps, and they are even more incredible than I’ve dreamed them ever to be.
I love you more than you will ever know my dearest Skylar. We’re finally here and can only move forward xo